Kickball tournament held in honor of boy with Sanfilippo syndrome

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Crowds gathered for a kickball tournament in Dobbs Ferry Saturday to raise money and awareness for a 10-year-old boy with a rare disease.

It marked the second annual Moonball Tournament, named in honor of Jacob Moon.

Moon has Sanfilippo syndrome, a kind of Alzheimer's that uniquely affects children and destroys the brain over time.

Moon was diagnosed with the disease three years ago. He has lost the ability to speak, and can hardly move on his left side. He is only expected to live until the end of his teen years.

Moon's parents gave advice to other families affected by the disease.

"Take the days as they come," said Bill Moon. "It's a tough thing to deal with as a family but the more people you can get to rally around you, I think the easier the journey becomes."

The money raised will go toward Moon's care and to the Cure Sanfilippo Foundation.

Organizers hoped to beat last year's fundraising total of $12,000.

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