Kickball tournament held in honor of boy with Sanfilippo syndrome

Crowds gathered for a kickball tournament in Dobbs Ferry Saturday to raise money and awareness for a 10-year-old boy with a rare disease.

News 12 Staff

Nov 2, 2019, 3:19 PM

Updated 1,647 days ago

Share:

Crowds gathered for a kickball tournament in Dobbs Ferry Saturday to raise money and awareness for a 10-year-old boy with a rare disease.
It marked the second annual Moonball Tournament, named in honor of Jacob Moon.
Moon has Sanfilippo syndrome, a kind of Alzheimer's that uniquely affects children and destroys the brain over time.
Moon was diagnosed with the disease three years ago. He has lost the ability to speak, and can hardly move on his left side. He is only expected to live until the end of his teen years.
Moon's parents gave advice to other families affected by the disease.
"Take the days as they come," said Bill Moon. "It's a tough thing to deal with as a family but the more people you can get to rally around you, I think the easier the journey becomes."
The money raised will go toward Moon's care and to the Cure Sanfilippo Foundation.
Organizers hoped to beat last year's fundraising total of $12,000.


More from News 12
1:52
Police: Child struck by vehicle in Spring Valley, taken to Westchester Medical Center

Police: Child struck by vehicle in Spring Valley, taken to Westchester Medical Center

2:24
Mild, temperatures in the 70s Tuesday in the Hudson Valley

Mild, temperatures in the 70s Tuesday in the Hudson Valley

1:56
Ceremony held to mark Holocaust Remembrance Day in White Plains

Ceremony held to mark Holocaust Remembrance Day in White Plains

1:42
24-year-old double organ transplant recipient hosts blood drive in Pomona

24-year-old double organ transplant recipient hosts blood drive in Pomona

1:49
SUNY Purchase faculty and students want disciplinary action against protesters dropped

SUNY Purchase faculty and students want disciplinary action against protesters dropped

0:50
Orange County cracks down on drivers who illegally pass school buses with cameras

Orange County cracks down on drivers who illegally pass school buses with cameras

1:36
‘Very best’ of PD: City of Newburgh promotes longtime lieutenant to chief

‘Very best’ of PD: City of Newburgh promotes longtime lieutenant to chief

0:23
State police work to ID body that washed ashore in Poughkeepsie

State police work to ID body that washed ashore in Poughkeepsie

1:01
Tuckahoe Village Board hears Ward House appeal

Tuckahoe Village Board hears Ward House appeal

0:35
Rockland DA: 23-year-old man indicted in New City driveway stabbing

Rockland DA: 23-year-old man indicted in New City driveway stabbing

1:11
SUNY Purchase creates ‘protest zone’ following encampment break up by police

SUNY Purchase creates ‘protest zone’ following encampment break up by police

1:53
FEMA awards Babbitt Court with grant to raise homes to reduce flooding

FEMA awards Babbitt Court with grant to raise homes to reduce flooding

2:15
Turn To Tara explores how to stay safe from ‘cyber kidnapping’ scams

Turn To Tara explores how to stay safe from ‘cyber kidnapping’ scams

1:20
Headlines: Putnam Valley man dies in excavating accident, 2 injured in Newburgh fire, man charged with larceny in Liberty

Headlines: Putnam Valley man dies in excavating accident, 2 injured in Newburgh fire, man charged with larceny in Liberty

0:45
Hudson River Clean Up Day celebrates 13th year

Hudson River Clean Up Day celebrates 13th year

0:47
New Rochelle hosts 'Cinco De Mile' charity event

New Rochelle hosts 'Cinco De Mile' charity event

1:51
Hundreds walk at Glen Island Park to raise money for multiple sclerosis research

Hundreds walk at Glen Island Park to raise money for multiple sclerosis research

0:30
Zibanejad has 2 goals and 1 assist, Panarin scores as Rangers beat Hurricanes 4-3 in Game 1

Zibanejad has 2 goals and 1 assist, Panarin scores as Rangers beat Hurricanes 4-3 in Game 1

2:06
New guidance says women need to be screened for breast cancer at 40 or younger

New guidance says women need to be screened for breast cancer at 40 or younger

3:17
SUNY Purchase students hold quiet demonstration following arrests of protestors

SUNY Purchase students hold quiet demonstration following arrests of protestors