Paul and Rene Hodes, of Shrub Oak, hope raising awareness of AHC will help find cure
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SHRUB OAK - This Friday marks "Rare Disease Day," a day designed for victims of little-known diseases to highlight their struggles with the public.
Paul and Renee Hodes, of Shrub Oak, hope that raising awareness to their daughter's neurological disease can help find a cure.
Lisa Hodes suffers from a genetic defect called alternating hemiplegia of childhood, or AHC.
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Doctors say AHC only affects about 300 people in the U.S.
Lisa and her family say the only way they are going to find a cure is if more people get educated about the disease.
"If you do nothing, you get nothing, and we're just trying to help our children, and that's the way I know how," says Paul Hodes.