Paul and Rene Hodes, of Shrub Oak, hope raising awareness of AHC will help find cure

This Friday marks "Rare Disease Day," a day designed for victims of little-known diseases to highlight their struggles with the public. Paul and Renee Hodes,

Lisa Hodes suffers from a genetic defect called alternating hemiplegia of childhood, or AHC.

Lisa Hodes suffers from a genetic defect called alternating hemiplegia of childhood, or AHC. (2/26/14)

SHRUB OAK - This Friday marks "Rare Disease Day," a day designed for victims of little-known diseases to highlight their struggles with the public.

Paul and Renee Hodes, of Shrub Oak, hope that raising awareness to their daughter's neurological disease can help find a cure.

Lisa Hodes suffers from a genetic defect called alternating hemiplegia of childhood, or AHC.

Doctors say AHC only affects about 300 people in the U.S.

Lisa and her family say the only way they are going to find a cure is if more people get educated about the disease.

"If you do nothing, you get nothing, and we're just trying to help our children, and that's the way I know how," says Paul Hodes.

More on this topic

Rare disease

AHC Kids

advertisement | advertise on News 12

Trending Video

VIDEO: Mount Vernon woman sentenced in daughter's killing 1 VIDEO: Mount Vernon woman sentenced in daughter's killing
Kristina's Korner tracks the 2 Trending: "No First Pitch for Trump"
Police say the crash happened at the intersection 3 4 injured in 10 car pileup in Monsey
Police say Calvin Diggs may be responsible for 4 Police: Suspect may have robbed 3 grocery stores
5 Westchester/Hudson Valley Sportscast, March 28

advertisement | advertise on News 12

Features

Sorry to interrupt...

Your first 5 are free

Access to News12 is free for Optimum, Comcast®, Time Warner® and Service Electric℠ video customers.

Please enjoy 5 complimentary views to articles, photos, and videos during the next 30 days.

LOGIN SUBSCRIBE